Embracing Life with Ulcerative Colitis: Stephanie's Journey
Spring symbolizes renewal and growth. For Stephanie, this season marks six years since her diagnosis with ulcerative colitis (UC), an autoimmune disease affecting the large intestine. To commemorate this milestone, Stephanie chose to share her story through a heartfelt photo session, aiming to inspire and support others facing similar challenges.
At 45, Stephanie reflects on her journey with UC—a path filled with unexpected turns, from numerous hospital visits to a significant surgery resulting in a stoma. Despite the hardships, she views this experience as transformative, bringing her closer to herself and highlighting the unwavering support from her loved ones and medical professionals.
The Power of Photography:
Photography served as a therapeutic outlet for Stephanie, allowing her to express vulnerability and strength simultaneously. Through the lens, she aimed to demystify stomas and ostomy bags, shedding light on life with UC and breaking down associated stigmas.
A Message of Hope:
Stephanie's journey underscores the importance of resilience, self-acceptance, and the support of a compassionate community. Her story serves as a beacon of hope for those navigating life with chronic illnesses, reminding them they're not alone.
Stephanie's narrative is a testament to the human spirit's capacity to adapt and thrive amidst adversity. Her courage in sharing her experience offers solace and inspiration to many, fostering a deeper understanding of living with ulcerative colitis.
Stephanie's Story:
"6 years ago today, I received my wake up call. It came by way of a diagnosis of ulcerative colitis - an incurable autoimmune disease of the large intestine. In my wildest dreams, I could not have foreseen the roller coaster ride which ensued: specialist appointments, a litany of drugs, each stronger than the last, with little reprieve from this debilitating disease.
I spent enough time in hospital that it almost became a second home. However, I wouldn’t swap the last six years of my life for anything in the world. It has been a journey involving: denial, confusion, despair, depression, perseverance, joy, happiness and peace.
It has allowed me to see the best of humanity from my husband, children, family and friends, medical professionals and total strangers.
Two years ago, my life took another turn. Precancerous cells were found in my large intestine and an operation was the only solution. I felt such relief as I realised that my daily battle was over. I had the operation to remove my large intestine and a stoma was created in its place. I wear an ostomy bag over my stoma and it needs to be changed daily. While the first few months posed some challenges as I adapted to these changes, I can honestly say that overall, I took to my new life like a duck to water.
I am grateful for my ostomy bag and on this anniversary, I want to do my part to help demystify stomas, ostomy bags and this is the purpose of the photos that I share with you in this post.
Ulcerative colitis, you came into my life 6 years ago, you turned it upside down but you led me on a journey which has brought me closer to myself. You are truly the best thing which has ever happened to me and all I can say is Thank You. 😊⭐️♥️
Acknowledgements: Thank You to Olivia Sutton from Photo Finish Photography who showed such flair, creativity and sensitivity in taking these photos. Thank you also to Zara who assisted her on the day. I could not have done this photoshoot without the two of you ♥️" - Steph
If you or someone you know is navigating life with a chronic illness like ulcerative colitis, consider capturing your journey through photography. Let's create a space where stories like Stephanie's can inspire and empower others. Contact us to learn more about our compassionate photo sessions.
